Collin's Room

We use a lot of equipment in this house. It could be even more, but we try to keep things as simple as possible without sacrificing functionality. Collin's bedroom is a good example of how we try to stick with the essential equipment and then choose accessible items from mainstream sources to fill in the gaps.

Any guesses on what Collin is into right now?

Any guesses on what Collin is into right now?

Note: I wanted to do this post a long time ago, but Collin wouldn't give me the okay until I finally took down the flowery wallpaper border and painted over the pastel pink that was there when we moved in.

1. Bed. We could have a special medical bed. It wouldn't be hard to get insurance to cover it. But we just don't feel a strong need for it right now. Collin isn't mobile enough to need to be contained in his bed and he helps enough that we don't need a bed that raises and lowers. So, it's a plain old twin bed for Collin. There is a collapsible bedrail under there that we use at both naps and overnight.

2. BiPAP. Nonnegotiable. Collin needs to be able to breathe at night. So we keep it there on his bedside table with the tubing running behind his bed and the mask waiting under his pillow.

3. Monitor. That white thing behind Collin's favorite dinosaur toy is a video monitor. Because Collin doesn't express himself with any words, we really need to be able to see him at all times to determine whether or not he's okay.

4. Closet storage. The closet is where we stash oxygen tanks, orthotics, extra medical supplies, backup g-tubes, and the oxygen concentrator. Oh, and clothes.

5. Tent. Collin got this tent for Christmas three years ago and it's been so great for him (many of our favorites over the years have been from B. Toys). Not only is it fun to play and read in, but Collin really appreciates alone time and this gives him a place to have it when he is overstimulated.

6. Open space. Between Collin's wheelchair, gait trainer, and stander, it's important that we have plenty of open floor space in every room, including his bedroom. He also needs to and enjoys spending time stretched out on the floor and he's super long now. It is good motivation to keep things somewhat tidy. That green chair folds up flat with one switch if we need more room.

This is what works for us. It has changed over time and probably will again, but for right now, this is our sweet spot between special equipment and run-of-the-mill kid stuff.